Interested in joining Colorectal Cancer Canada's Support Groups? For more information, contact us at: info@colorectalcancercanada.com

ONGOING EFFORTS

Although we’ve accomplished a great deal over the years, the fact remains that while colorectal cancer (CRC) is preventable, it continues to be a leading cause of cancer death in Canada. Moreover, we are faced with new challenges, such as rising rates of CRC in young adults and keeping up to date on advancements in research and development.

Our various initiatives allow CCC to continue to advocate for the well-being of CRC patients and those at risk.

Immunotherapy

Introduction

Treating colorectal cancer (CRC) has evolved over the past few decades. In the past, all patients might have received the standard therapy used for all people with colorectal cancer. Today, people with colorectal cancer may have very different kinds of tumors at the cellular level. The use of biomarkers has helped to create a more personalized approach to cancer care that helps to guide healthcare providers to make more informed decisions on your treatment options.

There are many different types of treatments used to treat colorectal cancer: surgery, chemotherapy, radiation treatment and systemic treatment. One type of systemic treatment that has been noted to produce positive results in a select group of patients is immunotherapy, which essentially involves priming your natural immune defenses to recognize, target, and destroy cancer cells effectively.

The mission of Colorectal Cancer Canada’s Immunotherapy Program is to raise awareness and education on immunotherapy and advocate on behalf of colorectal cancer patients seeking access to it as a promising new cancer treatment. CCC is reaching out to the Canadian colorectal cancer patients to inform them of the benefits of immunotherapy as well as the side effects, clinical trials, and the need for funding to support immunotherapy research.

In order to ensure that the right patients receive the right treatment at the right time, CCC has a particular interest in ensuring that patients are able to receive timely biomarker testing so that appropriate treatment plans can be made in a timely manner.

To learn more about the Immunotherapy Program, read the brief here

Key Activities

  • Launch of our first survey of CRC cancer patients regarding their experiences with diagnosis and treatment choice, access to immunotherapy, side effects and impact on quality of life
  • Creation of educational materials on the comprehensive array of treatment options including immunotherapy
  • Dialogue with national and international partners regarding approved drugs and advise for health policy change and innovation in access
  • Profiling of patient life experiences while on immunotherapy to raise awareness and educate the public
  • Creation of patient guide for patients on immunotherapy including what to expect in terms of side effects, quality of life and prognosis
  • Social media campaign to inform the lay public of personalized medicine and immunotherapy in Canada
  • Advocacy efforts to improve access and delivery of immunotherapy in Canada

Resources

Program Brief
Immunotherapy Patient Guide: coming soon
Immuno-oncology: Redefining cancer treatment

PACT DIAGRAM

CANADIAN CANCER CLINICAL TRIALS TRANSFORMATION INITIATIVE MODEL

A mere two to six percent of cancer patients are currently enrolled in cancer clinical trials in Canada. Often, trials cannot be completed due to poor recruitment of patients. The reasons for this are varied and CCC has taken a leadership role to address this problem in Canada through four annual conferences and our work in the adoption of the USA Duke/FDA Clinical Trials Transformation Initiative (CTTI). CCC has developed a Canadian patient group pathway model based on the CTTI model (the Pathway Model).

CANADIAN CANCER CLINICAL TRIALS STAKEHOLDER CHARTER

To address the implementation of the Pathway Model and with a view of increasing patient centricity in clinical trials, increasing knowledge of and participation in clinical trials, CCC has led a working group to develop a charter for stakeholder adoption. The Canadian Cancer Clinical Trials Stakeholder Charter calls for inclusion of patient groups in cancer clinical trials throughout the clinical trial continuum setting out five key tenets as principles to guide clinical trial stakeholders when engaging patient groups in their trials.

AISE INITIATIVE

The AISE Initiative creates and advocates for the Charter Implementation Plan among all stakeholders in the clinical trial continuum. The Initiative aims to create a methodology to facilitate the institution and continuous improvement of The Charter across all clinical trial continuum stakeholders, including Contract Research Organizations; Clinical Research Units; Government Institutions; Medical Researchers; Patients and Patient Groups; Cancer Networks; Pharmaceutical Companies; Regulatory Bodies (internal and external)

Please visit PACT Canada for further information.

Resources

The Patient Group Pathway Model to Accessing Cancer Clinical Trials is a Colorectal Cancer Canada (CCC) initiative which aims to increase recruitment, participation and retention rates of cancer clinical trials within Canada. A consensus meeting and a working group meeting were hosted by CCC in 2017 and recommendations on increasing uptake were published in Current Oncology in 2018. In 2018, a conference regarding The Patient Group Pathway Model and Real World Evidence Conference was hosted to draft a Patient Charter for clinical trial stakeholders. In 2019, a two-day conference was organized to foster patient group partnerships among stakeholders who advocate for cancer clinical trials in Canada and the development of Real World Evidence to help reduce uncertainty in clinical trial results.

READ OUR
PUBLICATION

A Canadian Framework for Integrating the Patient Voice into the Cancer Clinical Trials Continuum

Download

Current Oncology publication: Patient and Patient Group Engagement in Cancer Clinical Trials: A Stakeholder Charter

Download

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