Our Impact
Learn about how we are making an impact in the colorectal cancer and pan-cancer community, in Canada and around the world.
Survivor Testimonials
In 2022, I was diagnosed with advanced metastatic colorectal cancer. A large lymph node in my groin was the first sign that something was wrong. In the midst of this devastating news, Colorectal Cancer Canada reached out to me. I am so grateful to CCC for their unwavering support. They encouraged me to seek a vital second opinion and helped connect me with the resources to do so. They mobilize a strong community of survivors to support the newly diagnosed and those trying to beat this disease. They make sure that no one goes through this alone. Together we can raise awareness, promote life saving early detection, and provide much needed support to those affected by colorectal cancer – a group that’s increasingly including younger and younger Canadians. Join me in supporting colorectal cancer as they continue to make a difference in the lives of so many, just like they have in mine.
For anyone seeking a genuine source of information and support during their CRC journey, I wholeheartedly recommend exploring CCC’s website. My experience, from being a recipient of their services to spending time as a member of their passionate team, is a testament to the organization’s authentic commitment to making a positive impact on the lives of those affected by CRC.
I’m really grateful to CCC for support over the last eleven months. This included advice and considerations on clinical trials, diet and exercise, along with surgical recommendations, from three helpful staff. Fine perspective, which was needed, and thank you to all!. So fortunate that an organisation like CCC exists.
I can’t possibly say enough about Colorectal Cancer Canada and the impact they’re making for people like me. I’ve seen firsthand how the programming and advocacy impacts people touched by cancer. I’m fortunate to have found CCC at a time when I’ve needed their support”
Our Activities
Biomarking/molecular profiling – Get Personal Campaign and the Beat Cancer Coalition
Biosimilars – CCC collaboration with the Education Committee of the pan Canadian Oncology Biosimilars Initiative with Cancer Care Ontario (pCOBI) and with the Quebec Ministry of Health on Biosimilars
Drug reimbursement – CCC regularly provides input to CADTH (pCODR) and INESSS providing the patient perspective to expert committees’ evaluating new cancer treatments for reimbursement
Health policy in prevention – CCC was a founding member of and sits on the Canadian Partnership against Cancer’s (CPAC) National Colorectal Cancer Screening Network (NCCSN)
Access to data – IQVIA panels and providing input on BIG Data and other issues to improve the health of Canadians
Quebec Government Panels (PQC) – CCC works with the Comité national des milieux communautaires en cancérologie to provide insights to the Quebec government Programme Québécois Cancérologie
Transforming Healthcare in Canada Providing insight on a Board level to the Canadian Personalized Healthcare Innovation Network (CPHIN) that visions a healthcare system enabled by data and innovation to improve health outcomes for Canadians
Participant in Canada Health 2030 Visioning the future of health care in Canada.
Clinical Trials Networks – Provides insight on the Board of Directors of clinical trial networks such as Exactis Innovation
Consortium de recherche en oncologie clinique du Québec (Q-CROC) and brings the patient perspective to Quebec Clinical Trials and helped to create the Quebec CRC Community of Practice in Clinical Trials
Participates as a Patient advisor to the Terry Fox Marathon of Hope
Patient Stakeholder Group with BioCanRX
Cancer Research Projects – Provides the patient perspective as collaborators and often as investigators in many Canadian Institutes of Health Research (CIHR) funded cancer research projects
Health Technology Assessment – Provides insights on patient preferences and other patient perspectives to international health technology assessment bodies such as the International Society for Pharmacoeconomic and Outcomes Research (ISPOR) and Health Technology Assessment International (HTAi) as part of its Patient and Citizen Involvement Group (PCIG)
Coalitions – CCC takes a leading role in various cancer group coalitions such as the Coalition Priorité cancer au Québec in Quebec and CONECTed across Canada and internationally in the Global Action for Cancer Patients (GACP) and the Global Colon Cancer Association (GCCA) as well as the US based GI Alliance as well as partnering with individual colorectal/bowel cancer associations internationally.
Industry Panels – Provides patient group insights on Health Policy in Canada to Innovative Medicines Canada and other Industry Panels both in Canada and Globally
Resiliency in Healthcare Systems – Member of the Steering Committee of the Resilient HealthCare Coalition.
Value Based HealthCare – Member of the Advisory Committee Meeting for VBHC Canada Colorectal Cancer Demonstration Project Initiative in Colorectal Cancer.
Member of the Canadian Health Research Forum (CHRF) to advance cancer research in Canada.
Cancer Research UK (CRUK) Patient advisor to the International Grand Challenge CRC Research on the Microbiome (OPTIMISTICC)
Board member at FT3 (From testing to targeted Treatments) assisting in leading programs, defining the long and medium-term objectives. FT3 is a non-profit organization whose mission is to make precision medicine accessible to all patients who could benefit from it.
